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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi all, sorry me again. Just wondered if a rash on lower legs need looking at? It has come and gone over the last week. Its red, and lots of spots altogether on front and back of calves. Also just lately, have lost my appetite (not a bad thing weight wise!!) and cant seem to fancy anything. I have cereal in the morning, but at lunch time I try to eat a sandwich but just cant, and end up giving most of it to the little ones. Even evening meal is becoming a problem, and I am having toast or more ceral. Just wondering if it could be any of the meds? Thanks everyone x BARBARA
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Joined: 12/3/2009 Posts: 561
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Do you use a high factor sun cream for the Lupus ? i get a rash if im in the sun so i stay in the shade at all times and put factor 50 on , never had it on the legs though so it might be some thing else , appetite wise i cant help sorry ,
Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Sophie, hadnt thought of the sun protector. Used it on arms neck etc but forgot about legs. I have been wearing leggings or crop cotton trs. Not diagnosed with lupus, but do get the butterfly rash. All tests come back negative, and when I brought photos of rashes, he said he has to see it himself. I also got the rash when having my eyes tested, the lights were strong, and a small room, so face and hands all came up. Not sure if its due to that, but who knows? Thanks for the reply Sophie x BARBARA
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Joined: 5/19/2010 Posts: 384
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Hi Barbara,
Can't help with the rash but I also have a loss of appetite. I have just taken my seventh dose of MTX and have found a pattern emerging, for approximately three days after taking the tablets my appetite is poor, the it goes back to normal.
Anne
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Annie, I dont think its the mtx, as I take in on Friday evening, and its been like this since before I took the last dose. I do know it can make you feel sick etc but I have been on it since July 2009 and have been ok, am currently on 20mg BARBARA
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Joined: 12/3/2009 Posts: 1,035 Location: in a house
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barbara Well i also have rashes a mixture of roseasa ance rosaca dermatis and some other rashes and scleroderma and have to see the top dermiotlogy along with the R.A man togetor . i always have used 50 factor this time i asked questions about being in the sun abroard . the Ans was use 50 or 60 factor keep re applying follow the bottle which use proper should last 6 goes . any old sun cream chuck it goes off . wear long sleves hats cover as well and use on face feet . Which i had been doing .She comfirms a big must and nothing below 50 factor and keep applying christine The chocolate eating housewife ...The washer woman .....naughty lady
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Hi Barbs ohh deary well as u said apply sun cream elsewhere not legs id say it that can be mtx making u sun sensitive as its well known should use sun cream any exposed parts while taking mtx. factor 50. also same for lupus. and apetite id say more likely regarding level pain your in ra can decrease apetite when more active. could also be meds,do you take sulphazine? hugs melly cuddly cats make my world seem so much more fun
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BarbieGirl wrote:Hi all, sorry me again. Just wondered if a rash on lower legs need looking at? It has come and gone over the last week. Its red, and lots of spots altogether on front and back of calves. Also just lately, have lost my appetite (not a bad thing weight wise!!) and cant seem to fancy anything. I have cereal in the morning, but at lunch time I try to eat a sandwich but just cant, and end up giving most of it to the little ones. Even evening meal is becoming a problem, and I am having toast or more ceral. Just wondering if it could be any of the meds? Thanks everyone x use 50 /60 factor all the time but check this out with someone as i get reations to drugs rashes and other things The chocolate eating housewife ...The washer woman .....naughty lady
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Joined: 3/8/2010 Posts: 914
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Hi Barbara, I came out in a rash very similar to what you describe, when first on the meds was never sure which one triggered it, but had to stop all and re start again. After which I have had no problems. Mine started with the legs then spread on my arms then middle. Slowly disappeared on stopping the tabs. Then re introduce bit at a time. What are your doctors saying hope you get it sorted soon. Lorna x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Lorna, thanks for the information. Will call gp on Monday and ask for appt. Have re read the mtx info and says that red dot rash can be a side efect, but have been on them since July 2009, so seems odd if its them. The newest med is the sulfasalazine, I take 3 per day since April 16th so maybe its them? It has died down a bit on right leg, but still quite angry on left one. Still feeling rubbish though, but at least its the weekend, so can rest now. BARBARA
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sorry to hear about your rash . Suggest you ring the docs and get sorted
Have a good w end
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hugs barbs naughty rash could also be heat type rash my one on back has come up since weather got warmer also red spots together is it itchy at all mine is got don put cream on mine. id say mines more like uitcaria or prickly heat does yours prickle when hot and itch at all?(spelling) for me thought mine may be naproxen but as i had it before dont see if can be. had mtx youve had for quite while,but it could be sulphazineits tricky isnt it when on more meds best ask gp monday good luck for appointment. lv melly cuddly cats make my world seem so much more fun
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Hi Melly, the rash isnt itchy at all, it doesnt appear to be raised either. Could be the sulfa, as only started recently. Will try to get appt as soon as I can to get it looked at. Still feeling ill, lots of pain etc. didnt realise how much pred was helping til I stopped it lol!!! Anyway, carry on regardless!! take care, and thanks so much everyone for the replies, lots of love x BARBARA
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Hi Barbara - sorry to hear things are so rough. I also had a rash with the Sulpha but it was on my hips and thighs and was itchy. I hope you are managing to get some rest this weekend.
Julie xx
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 Hello Brbas not itchy is good at least not making you uncomfy,i got rash on feet lower legs also rheumy has seen it and for me its like blood under skin,small red dots. not been given any clue what it is exactly but told is lupus for me i may be pushing see a dermy at some point regarding rashes wonder if youd thought doing that to. sorry you such pain can see why but as u said rheumy needs see you without steriods in system id encourage you follow his reasoning.i suspect he may be wanting see if you qualify for anti tnf so therefore hed need see more swelling. sametime imsure others also ahd steriods while having assesments for anti tnf you said had das score done so that means i suspect he may do another das need have 2 done to qualify pass both certain level to be assessed if get my drift,did for me at that time i had less swelling.grr as u if im correct need fail 2 dmards re not working. anyway hope im not going on ....... anyway put feet up as say go on as normal with bit more rest i hope,or il be telling you off kindly. catch up in week lv melly cuddly cats make my world seem so much more fun
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Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Julie and Melly, thanks for replies, the rash has raised red dots, and then seems to sort of blend together. Oh well, no point worrying now. I know you will be telling me off, I am telling myself off!! At the moment I think I must be crazy to keep working. When on the pred it was easier, even on lower dose made a difference. Rested today, so feeling better, back still hurting but not so bad now. Have another easy day tomorrow, we are meeting Leanne's boyfriend for the first time and having a meal for Father's Day. Hope he can cope with us lol!!! BARBARA
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I started to take sulpa........May 2008.
Last July when I was in Spain I noticed a rash on the bottom of my legs, near the ankles. I first noticed it on my right leg, it looked like really bad prickly heat rash, but the other leg was much, much worse. I remembered that I had read somewhere that sulpa...can bring you out in a rash and if it happened to stop taking the drug. It was the day before I came home so I stopped taking them and phoned my nurse as soon as I got home. She told me not to worry and if it had been a reaction to the tablets it would of happened straight away and not over a year later.
I had an appointment with the consultant a week later and I showed him my legs, the rash had calmed down but the skin was darker where it had been. Hr told me that the sulpa......... had made my skin photo-sensitive to the sun. I must add that I do always put on sun screen when I go to Spain or out in the sun.
I still think that you should go to see your doctor, just to be on the safe side.
Paula x x
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Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hi
I would see a dr and ask for your thyroid to be checked. Overactive thyroid gland will make you loose appetite and get leg rashes. Thyroid screening should be no 1 on the list I would suggest as thyroid issues often go hand in hand with RA, Fibro and Lupus like conditions. It is serious but can be simply treated just check things through with the gp on monday. You will need a THR test as well as T4 and T5 ideally.
Take a look at this website
http://www.thyroiduk.org...diagnosis/gp_visit.html
Helpful sint it?
you can get a lupus rash on the legs that is bumpy and it could be this, a sort of vasculitis or it could even be a pericarditis. There are lots of "could be" type things- must see GP....
Love
Jenni xxhow to be a velvet bulldoser
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I agree with Jenni. You really should get this checked out. Lots of love Jeanxxxxx
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Rank: Advanced Member  Groups: Registered
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Thanks Paula. I have been on sulfa since April, and not had problems before, but will check it out with gp. Jenni, so glad you are doing so well on the cimzia. I am on thyroxine as I had partial thyroidectomy in 1986, and have regular blood tests to check it, so shouldnt be that. I know rashes can mean various things, and will get it checked. Jean, will definitely get it looked at. Thanks everyone xBARBARA
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